Hello!! It is ME, AND I'M METHO FREE !
I just can not believe it!!! SO, last week I officially have been off the methotrexate. Still taking the Sulfasalazine and the Plaquenil but no methotrexate! And I actually feel okay. I mean, not GREAT, but not TERRIBLE. BUT I will say this, I wasn't always the best with refilling my meds and sometimes I would miss Tuesdays hit of Methotrexate and then not able to take them till about Friday and I WOULD REALLY FEEL IT. My body would like yearn for the hit like a crackhead. So in my mind, those couple of medicine free days was kind of like going cold turkey for the time being. But when that happened, I had massive pain. So all in all the end result is that tapering was definitely the way to go. I am so happy that I changed doctors and did it this way because I feel like so far it has been tolerable.
I did see my doctor last week and told him about the weird aches. When I had the sciatic pain from my last blog, it went on a couple of days to the point where I had to call him. He is a doctor who is against giving anything strong (narcotic wise) and prescribed me steroids. MEH. ROIDS... PASS! I did fill it just on the chance one day I REALLY have to jump on it to avoid a potential hospitalization but F THAT. I won't start a run of steroids till I am really a mess. I told him, and he gets it and said it was okay. Plus I do think I made the right choice since about two days after that my pain went away completely. You know your body better than anyone and your limitations. My opinion, don't ever just listen to a doctor if in your heart of hearts you are against it. No one knows your body better than you.
Any who - since I was feeling better I decided to go shopping in Soho, Manhattan. If you've been you know that requires a lot of walking. Soho is a lot of blocks. I was dead tired by the time I got home and started to feel pain EVERYWHERE. The next day I woke up and I was achy but most of all my toe bones were like pulsating. WTF. My poor little toesies. So weird! I never think of them and yet, they were really bothering me. So strange that this disease reminds you of the muscles and bones you quickly forget you even use. So okay, the usual knee pain, yeah sure. Elbows? Of course they'll ache. But my little piggies - they were feeling the pain. I told the doctor all of this and told me that the pain will come and go but so far with looking me over, the swelling is minimal and I "look good". He told me we have to keep our fingers crossed. These next months are the scary ones. The months where there's not much stopping a flare. Keep calm and STAY OUT OF THE SUN. He also said I can not try for a baby until December if all goes well. Since he hasn't worked with me that long he doesn't know how I should do without my medication BUT since I am continuing to take blood work every month, he will monitor my numbers and try to catch a potential flare before it happens. Just took blood work last night.. I guess time will tell.
The biggest difference I'd say minus the aches is the FATIGUE. Everyone is tired. You work long hours, or you have three small kids, OR you work long hours AND you have three small kids, I mean the reasons for being tired are endless. You can't compare your fatigue to someone else's but you can compare the tired you ONCE were to the tired you are NOW. And I can honestly say, months ago yeah, I would be tired but if I slept a nice 9 hours, I woke up rested. My body always felt better on my medicine in the morning and I had more energy after I woke up. I feel the opposite now. The mornings have become harder for me. I wake up tired. Even if I slept 10 hours, I am still fkn tired. SO ANNOYING. Even walking up the steps sometimes, I am tired. LOL But listen, if tired is what I'll be to have a god willing healthy pregnancy, then bring-it-on. I'll spend my weekends sleeping - doesn't sound bad to me. My number one hobby is watching TV, eating and taking naps. #Judgeme
I will write back when my numbers come in and hopefully they are even better than last time.
Side note: The doctor said it takes about 3 weeks to really clear out of me but 6 months to be safe enough for baby making so I guess that's one more week to really be out and see what it feels like. Excited. TILL THEN ! 😃
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